Coeliac Disease – Update

Coeliac Disease – Update

Apologies, if you are expecting a holiday inspired post that is a little more of an easy read, but unfortunately something cropped up, which I will explain in this post a little further. As some of you may know, a couple of months ago, after a lot of tests, it appeared in my bloods that I had Coeliac Disease, and was told to keep eating gluten until my endoscopy procedure, which was today, happy days, well…

I was initially, pretty nervous about the procedure, just because I felt confused at how a long, thin pipe could go down your throat and into your stomach? Ewww. The whole point of this procedure, was to confirm the diagnosis and to see what the damage of eating gluten had done to my stomach. Pretty simple right? No. I can honestly say the procedure was the worst thing I had ever experienced. I opted for sedation and an anesthetic of the throat (which tasted like rotting bananas as the nurse pointed out,) which meant I was still awake and conscious, but just not with it entirely. I’ve had sedation before, so I knew it was pretty strong stuff, but never experienced having the drug, whilst some doctor was repeatedly shoving a tube down my throat. Going into the room was scary, a bed in the centre of the room, with about 5 doctors/nurses watching you, probing you, sticking needles in you and various other medical shenanigans. Throughout this whole time I was repeatedly coughing/gagging/being sick/crying to the point where I had to tell them to stop. It was honestly the worst thing. In the end, they tried to give it one more go, and just shoved it in, so to speak, still with me being absolutely hysterical. I honestly, must have acted like a mad woman, crying and dribling everywhere.

After about 10 minutes, the procedure ended, to my relief. My throat was ridiculously sore after and I felt really delirious, as you would expect, and they wheeled me into a recovery room. The nurse came round and told me my results, which was in fact, I had celiac disease and they had sent the biopsies off for further testing. The irony was, was after the procedure, they gave me some Bourbon biscuits, which I know for a fact, are not gluten free, haha.

Has anyone had an endoscopy before? How did you find it?

Lots of Love,

Clox

 

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2 Comments

  1. June 10, 2016 / 2:53 pm

    I’m so sorry you had such a bad experience. My GI normally puts me under completely and I have never had any soreness after the procedure. I have had my fair share of endoscopies in the past 4 years so I totally relate with your fear. I really hope if you have to get another in the future you can find either a better doctor or it goes more smoothly. No one should have to go through that.

    • June 11, 2016 / 8:22 am

      I thought they would put me under considering how distressed I was. I’m hoping I will not have to have one anytime soon, but you never know with Celiac Disease!

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